The future treatment of Parkinson’s relies on the accurate assessment of how it affects people with Parkinson’s as individuals. SENSE-PARK is a pioneering project which combines expertise from technology with the experiences of those who live with Parkinson’s and the scientific know-how of those who treat it.
Presentation of SENSE-PARK to people with Parkinson's
The concept of Sense-Park was introduced to about 125 people with Parkinson's and their careers/partners in October 2011 at the Royal Society of Medicine, London.
An update on the progress with Sense-Park was presented in October 2011 at the Royal Society of Medicine, London, again for about 125 people with Parkinson's and their carers/partners.
Sense-Park has featured in the two publications produced by The Cure Parkinson's Trust, its Annual Review (April 2012) and its Newsletter (October 2011 and October 2012). These are mailed to over 4,000 people with an interest in Parkinson's. In addition, we have issued a dedicated newsletter for Sense-Park which is being distributed alongside the CPT Autumn Newsletter, as well as a dedicated mailing to people with Parkinson's in the UK. The Sense-Park newsletter will also be posted on our website, www.cureparkinsons.org.uk, our sister site for people with Parkinson's www.parkinsonsmovement.com and on the community http://parkinsonsmovement.healthunlocked.com/
World Parkinson Congress 2013
Cure Parkinsons Trust is very involved on a number of committees for World Parkinson Congress 2013 in Montreal. This event unites researchers and scientists, with health care professionals with people living with the condition. CPT has a vision to show-case Sense-Park in 2013, as has already started to develop plans of how best to do this, and importantly build a group of Sense-Park Ambassadors who all have Parkinson's to help bring the project alive.
First SENSE-PARK review meeting, 3 December 2012, Brussels
SENSE-PARK exploratory workshop, 4 December 2012, Brussels
Second Milestone Meeting, 11 and 12 April 2013, UK